A Bengaluru NGO has moved Supreme Court to seek financial aid for the treatment of patients with rare diseases - bills for whom run into lakhs per year Beg, borrow, steal. I will do anything to keep my daughter alive,` Prasanna Shirol admits many times over, with a smile that is obviously rehearsed to camouflage his pain. In the last 17 years, the Bengalurean has sold a few properties, borrowed crores from friends, and raised lakhs via crowdfunding for the diagnosis and ongoing treatment of Nidhi, his 19-year-old daughter. ``2.47 crore,` he rounds up the major costs incurred. His and Sharada´s only child, Nidhi suffers from Pompe, a genetic disease so rare that it is estimated to affect only...
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